Robbie's going to Disney World

As her son, Robert, proudly displayed his new football, Kathy Twible pumped her fists and shouted the popular phrase coined by past Super Bowl champions:

“We’re going to Disney World!”

Though Jets fans would love to see quarterback Mark Sanchez saying that on Super Bowl Sunday, the gathering at Meadowbrook Elementary School in East Meadow on Jan. 13 celebrated another kind of victory.
Robbie

Twible, 7, suffers from a rare and life-threatening skin disorder known as E.B. — epidermolysis bullosa. He was presented with his wish that day: a trip to Disney World in Florida. Fittingly, Robbie’s wish was granted through an organization led by a former Jet, the Marty Lyons Foundation.

But it was the efforts of three Meadowbrook staff members that made the second-grader’s dream trip a reality. Shelley Tauber, Melissa Stanford and Margherita Diglio, all of whom work closely with Robbie at school, applied for the wish on his behalf. They hoped to surprise Robbie and his family.

“The struggles that he goes through on a daily basis — they touch us,” said Tauber, Robbie’s speech pathologist. “He never has an unhappy day in his life no matter what he’s going through. We just wanted to do something for him and his family.”
“Nobody deserves it more than this family,” said Stanford, the school psychologist. “They are always happy, always supportive, always here for him and always here for us.”

Robbie is one of only a handful of children in the New York area with E.B., a genetic disease. Kathy, who, with her husband, Robert, leads a support group with other E.B. families, said she knows of only three other cases on Long Island.